Life…..with Melanoma
my journey on clinical trials with stage 4 cancer

Archive for the ‘Uncategorized’ Category

Hair today, gone tomorrow

June 29, 2012

I know, not very clever but what can I say it’s been stuck in my head for days. Frequently asked questions: -Did your hair all fall out? Yes and no. I spent some quality time outside pulling it out because it felt so damn good. But I realized it would not all fall out on it’s […]

Providence Cancer Center

June 17, 2012

This is why I am alive. This is why I go to Providence Cancer Center. New hope for cancer patients: Providence selected for international research network We are pleased to share exciting news with you about Providence Cancer Center. As you might have seen in a front page Oregonian story, Bristol-Myers Squibb is announcing the formation […]

Counting my blessings

June 16, 2012

In the midst of this shit storm of a life I have found myself in, I find I spend alot of time realizing how blessed I am. I have had an amazingly charmed life. And still am. I may be walking thru molasses and realizing the dog did indeed eat my wallet and license so […]

Life

June 12, 2012

6 down, 4 to go as I am ferried up and down I-5. So far so good. Today I think I feel the most perky, but that may be because I am so excited to cut down these damn steroids. Checked in with the Dr today and everything seems a go. So what is my […]

they paved paradise and put up a parking lot

June 7, 2012

Hey all, this is the real me, short and sweet. Live and local from my Mom’s house in Salem.  Still have my brains to write I think- you tell me I guess; still have my hair-now that I kind of like my curls they will soon be gone though; still have my spunk and fight-it’s there in […]

5 %#@&$! YEARS

May 6, 2012

On Wednesday May 9th I will enter the world of the 5 year survivor. 5  %#@&$! years- can you believe it?! I almost don’t myself. At 5 years they tell me I am in a small group of 9%-20% survivors- depending on whose numbers you want to believe. At 5 years I just know I have seen and […]

Life 5/2/12

May 2, 2012

So much going on around here, I feel such pressure to get all the info to you in a clear and concise manner. First off I am heading into week 8 of my 7th trial, the MEK162 at OHSU. So far so good, handling side effects ok, and we will see early next week with scans […]

Barefoot Lawn Mowing

April 21, 2012

First off lawn is an exaggeration at our place.  5 acres of grass mostly, the “lawn” portion is the grass surrounding the house. Grass, weeds and daisy’s.  Plus all the animals out here doing their part to help it along.  It never get’s watered,  weeded, or fertilized- only mowed. So lawn is definitely an exaggeration. Could Mike […]

ELECTRICITY

March 25, 2012

I have so much news to share, but I am going to start with the latest first and we can just work backwards in life. ( spoiler alert, I am fine) Oh how I love electricity, that magical, mystical, mysterious stuff that just appears in your house and makes it all work. When we built our […]

Hola desde México!!!

February 10, 2012

In the works for what seems like 2 days and 2 years at the same time, has been a trip with who I call my 3 SSS+C. They are four good friends of mine who decided we needed a trip. Away. Far away. I was bold enough to say sure, what could possibly go wrong in […]